Development of the Patient Data Repository

Development of the Patient Data Repository

The focus areas in the development of the Patient Data Repository in 2022 are the changes in the management of data sharing by virtue of the new Client Data Act and the tasks related to the COVID-19 pandemic.

The most important area of development is the preparation for changes in the management of data sharing in accordance with the new Client Data Act. The development also focuses on the information management tasks related to the COVID certificate.

Other development areas in the near future include

  • changes in authors
  • appointments
  • Purchased Service Solution 2.0
  • reform of technical interfaces (service requests)
  • assessment of treatment need.

Changes in authors

Support for three new author types is being introduced for the Patient Data Repository:

  • KOR: Correction, or the KOR role, is utilised when the original entry includes data that has been entered or produced incorrectly. In addition to the author data entered with the KOR role, the entry shows the author data of the original entry (for example, the original author is shown in My Kanta Pages).
  • The OHJ author role and the related instructions are needed because different types of software robots, medical devices, etc. generate an increasing amount of material for the Patient Data Repository. With medical devices complying with the EU Medical Device Regulation (2017/745), identification takes place with the UDI (Unique Device Identifier).
  • KAN: In the appointment document, KAN is permitted as the author’s role if the patient is the last person producing data for the document.

The specifications of changes in authors have been published, and the functionality is now ready for independent testing and implementation by the patient data system suppliers.

Other development has had to be suspended in 2021 due to tasks related to COVID information management and the changes to the Client Data Act.

Further information about author changes.

Schedules for the deployment of changes in authors

  • THL has prepared the functional definitions related to the development of the Purchased Service Solution and changes in authors. Functional specifications of the Patient Data Repository were published on 1 June 2020. CDA definitions related to changes in authors were published on 30 September 2020.
  • Changes in authors and the related new collection of specifications 2021.1 are ready for independent testing of patient data systems in the client test environment.

Appointments

The Patient Data Repository will now support the archiving and retrieval of appointment data in the healthcare service.

The sharing and utilisation of appointment data between various operators have been found to be a key need. Electronic appointment booking can be integrated as part of the process for both the client and the professional. Appointments are also a key part of the client’s situational picture and summary data required by the professionals.

In My Kanta Pages, the client will be able to

  • view appointment data
  • move to the appointment booking system through a link.

The implementation and deployment schedule for the functionality will be assessed in autumn 2021.

Further information about the archiving and retrieval of appointment data.

Purchased Service Solution 2.0

The development of the Purchased Service Solution has had to be suspended in 2021 due to tasks related to the management of COVID-19 information and changes to the Client Data Act. We aim to deploy Purchased Service Solution 2.0 during 2022.

Development proposals stemming from the clients’ needs have been implemented in Purchased Service Solution 2.0.

Further information about Purchased Service Solution 2.0.

Schedules for the deployment of the Purchased Service Solution

New service requests in the Patient Data Repository

New service requests are the recommended way for patient data systems to retrieve and archive data in the Patient Data Repository.

The simpler method of retrieval supports retrievals from the organisation’s own register and those made in a purchased service situation. A significant number of old service requests are replaced this way.

In the archiving stage, the data is inspected to a higher degree, which ensures a higher quality of archived data. When the volume of archived material increases, the service requests in retrieval make it easier to retrieve data. The pagination of search results enables data retrieval in smaller sections.

Further information about new service requests.

Schedule for new service requests

  • New service requests are available to the patient data systems in the client test environment for independent testing.
  • Clients’ deployments can start after joint testing has been completed.

Assessment of treatment need

Support for structured recording of the assessment of treatment need is added to the Patient Data Repository. The assessment of treatment need is an essential part of obtaining monitoring data for access to health care, which is being developed in the Valtava project (thl.fi), on the basis of data entered in the Patient Data Repository.

Last updated 15.03.2022